Nomsa is dead. The rest is history.

Last night Nomsa left this life of pain and suffering. Her work was complete and she went to be with Jesus, no doubt receiving a “well done, good and faithful servant.”   I am posting this blog a day early so that you will all know.  She leaves behind five children including a 7-year old son and two sets of twins. 

I first met Nomsa (her real name is Gcebile Mabuza) on December 13, 2012.  The story is recounted in my blog called wednesdayswithnomsa.blogspot.com.   Her second set of twin girls, Rachel and Leah, live at the toddler home on Project Canaan.  They were born on my birthday, November 19, 2012.  

Nomsa’s struggle with Drug Resistant TB has been a long one, years in fact.  She has lived longer than anyone would have expected.  In the middle of 2013 she put on weight and it looked like she was getting better, but the test results never reflected our hopes and dreams.

In August 2013 she got the news that her resistance to the drugs had increased and, as seen in the “must see” PBS/BBC Documentary film called “TB The Silent Killer,”  Nomsa learned that her MDR-TB had become XDR-TB.  Very few people have survived XDR-TB and with her HIV positive status, the likelihood that she would survive was low, but we still prayed for a miracle.

In April 2014 I was told by the doctor that they almost lost her, but again she rallied and the desire to live kept her alive.  In June 2014 she couldn’t take it any more at the hospital and begged me to take her out so that she could die at “home” – meaning Project Canaan.  And we did.

It was a difficult decision because she was suffering from a deadly and highly infectious disease, but we put precautions in place and brought her in the back of an open truck to the room that had been built for her.  Chloe and Nomsa became very close over the past 18-months and it was so timely to have her home while Chloe was off on summer break.  They got to visit, talk about “boys,” eat snacks together, and Chloe even got to help her choose her clothes, hair and jewelry for her big speech at the opening of the El Rofi Medical Center.  If you haven’t read her speech from that memorable day please go to: http://janinemaxwell.blogspot.com/2014/07/nomsa-addresses-nation-and-her-voice-is.html.

Funnily, she was quite a difficult and demanding patient.  For someone who is so sick and comes from abject poverty, her demands have been high and often unreasonable.  The entire team of caregivers did their best to be patient, gracious and loving through it all.

One day not too long ago, Nomsa's brother dropped off 400 Rand at the front gate for us to give her ($40 US). Up until that point he had never come to visit or care for her, but that day he dropped off cash. It is literally the only cash she had in years, since she had been in the hospital for almost three years. Do you know what she did with it? She quietly tucked it into my hand and asked me to buy Chloe an 18th birthday gift. She had me lean in close to her and she looked me straight in the eye and said, "Janine, it must be something very beautiful. Very beautiful." Can you even imagine that? Needless to say I bought a very beautiful necklace and returned lots of change.

 On a daily basis, Nomsa struggled taking her medication.  She was supposed to take dozens of pills each day and get an injection three times each week.  All day she worked to get the pills down her throat, but she never finished them. Some days she would take the yellow ones and other days she would only get the red ones down. On top of that, she would not eat or rarely ate (unless we brought her “goodies” … KFC or pork ribs).  In addition to that, she was very stressed all day long about taking her pills.  We learned that only four of the pills were actually for her Tuberculosis, the rest were to ward off the side effects of those four pills.  So a week or two ago we had a difficult conversation and she decided to stop taking her pills.  She said, "Janine, the Lord has numbered my days, and only HE knows when I will die.  These pills are not helping me anymore.  Only God can help me."  I supported the decision because it was easy to see that she was not improving by taking them and she was suffering physically and emotionally by taking them.   

On Thursday, August 21^st we had an urgent call to go and visit her.  She was in respiratory distress and was afraid. Ian and I rushed to her side and prayed with her to calm her down.  The next day some new friends from Medecins Sans Frontieres (MSF - Doctors Without Borders) visited to do some further training on dealing with infectious diseases and to counsel us through the days ahead with Nomsa.  They recommended that we take her back to the hospital for her final days as it would potentially be a terrible death and they wanted to spare us the heartbreak, pain and memories of her death.  I was almost sold on the idea until I spoke with the other girls who live at the Sicala Lesisha Kibbutz. When I told them that we might take her back to the hospital, they were shocked and begged me not to. They said, “Janine, she is our sister now and she must die at home.”  I was stunned.  I told them that it could be a terrible death, and did they really want to see that and have their children see it too?  They would never forget it.

They looked at each other and said, “Yes, if we were in our homestead she would die there. Just like our other sisters, brothers, mother and father.  This is our home now and she must stay. If you take her back to the hospital she will think we have abandoned her and that she is not loved.  We will be with her until the end. Please allow her to stay.” 

Wow.  These young women who have come to us through very difficult situations and circumstances took my breath away. They were willing to suffer the pain of watching someone die, so that she would die knowing that she is loved.  I agreed.

I explained this to our MSF friends and they were very moved by this bold and selfless decision.  We then met with Nomsa to discuss what would happen as she became sicker.  My concern was a question of resuscitation, or at what point DO we need to take her to the hospital?  The only hospital that would accept her was the TB Hospital, and I know how much she hates being at that hospital.  So, we had that conversation too with the nurses from MSF.  I asked her under what conditions would she want to be taken back to hospital?  Bleeding?  Pain?  Nomsa was very clear that under no circumstances would she want us to take here there.

On Sunday, August 25^th Nomsa called me and begged me to take her to the TB Hospital. She said she didn’t believe that she was dying, but said when she got there they would put her on a potassium IV, she would get better and come back home.  She could not walk anymore and was in a lot of abdominal pain.  On Monday morning we met and again she begged and pleaded with me to take her to the hospital.  The problem was that I wanted to honor the agreement I made last week with witnesses that I would not take her back.  I tried to buy time by saying that I didn’t have an open-backed vehicle that I could take her in that day.  But she was a determined young woman and called the doctor at the TB Hospital herself, and he sent an ambulance to pick her up.  The decision was taken of my hands, and for that I was thankful.  

When they lifted her up into the back of the ambulance, I immediately recalled the day I first met her. It was December 13, 2012, and she was in the back of the same ambulance heading to the TB Hospital, just as she was this day. Not knowing how infectious her disease was back then, I climbed up into the back of it and gave her a big hug as she handed me her twin girls who were almost a month old.  They had been living and dying with her in her mud hut until someone reported her to the hospital.  I assured her that I would care for them as if they were my own.  The doors were closed and off they drove.

Nomsa lived with us on Project Canaan for the last two and a half months of her life.  As the ambulance drove past the toddler home we brought her twin girls, Rachel and Leah, out to wave to their mom.  It would be the last time they would get to see her alive.

On Tuesday and Wednesday she called frequently to talk, tell me how badly she was feeling, and of course to ask me to bring her “goodies.”  But this time it wasn’t KFC that she wanted, it was her Bible, disposable diapers and anti-diarrhea pills.

Late in the evening on Thursday she took a turn for the worst and the diarrhea was unstoppable. She went into respiratory distress around 10 PM and was given oxygen as well as medication to try to pull her back from deaths door.  At midnight she took her final breath and was gone.

I didn’t know this was happening, but couldn’t sleep that night. I was awake thinking and praying from 2 PM until morning.  At 6:17 AM I got a call from the young woman who was here caring for Nomsa on the farm, telling me that she got a call from one of the cleaners at the TB Hospital to say that Nomsa had died in the night.  I didn’t want to believe her, so I called every doctor and nurse I had phone numbers for to get confirmation.  At 7 AM I heard the news officially.  She was gone. 

No more pain. No more suffering.  No more tears.  No more fear. 

As I reflect on my sleepless night, I realize that I didn’t once think to pray for her.  I prayed for my children, my husband, the babies and Aunties, all of our staff around the world and our long-term volunteers, but not once did I think to pray for her.  Now I know why, there was no need.  She was with Jesus.  And for that I am thankful.

“Blessed are those who mourn, for they will be comforted.”  Matthew 5:4

Live from Swaziland … my heart is so sad, but I know that she is at peace.

Janine

PS – We have established a Nomsa Memorial Fund at Heart for Africa.  If her life has touched you as it has touched mine I encourage you to make a contribution and leave a note in the comments box for her twins. All notes will be printed out and put in the girls special keepsakes boxes to read when they are older.  All donations will be used to provide hospital/medical care to Nomsa’s children, and all the children who living on Project Canaan. We will put a plaque in her memory at the El Rofi Medical Centre.  Click here.

“I think that woman is carrying a dead baby.” Ian said.

“I think that woman is carrying a dead baby.”  Ian said, as he drove across the narrow bridge near Gebeni. 

Stop the car!

One year ago today our family landed in South Africa and prepared to drive to Swaziland where we would move in to our new home.  It was a long awaited move for me because I wanted to move in 2003 when my feet first hit African soil.  But God’s timing is always better than my timing and June 1^st, 2012 was the day when that dream became a reality.

It has been a difficult year, but also one of the best years of my life.   Today was just another “normal day” in Swaziland with highs and lows, but it seems to be indicative of the year we have lived.

Mela, Eleasha, Dana, Barbara, Gwyn and Becky.

We have a small team of amazing jewelry/accessory designers (volunteers) with us for a week working on the first “line” of accessories that will be made at the Khutsala Artisans Shop on Project Canaan.  We started the day by visiting a local family who is destitute.  There are 12 people living in the homestead and the husband/father died in 2001 leaving the young wife with 9 small children to care for.  The woman explained that she has no education and no skill to earn a living.  Her story was sad and her environment even more sad.  I asked if she made grass mats that we might purchase and she came back with 4 beautiful grass placemats that she had made. Clearly she DID have a skill and after we offered twice her asking price (smile) I also placed an order for 40 mats that could be sold to trip participants this summer.  Then Dana from WLA (Women Leaders in Action at the US Bank) also placed an order for an additional 40 and the woman squealed with delight!  Never had she had an order for so many – typically she only made a few at a time.  The day was off to a good start and we potentially had our first Khutsala Artisan employee.

We left excited about helping this family for the long term and were heading to an outdoor event called “Bushfire”. It is a 3-day festival of African music, culture, arts and artisans. We would shop, eat, get ideas and enjoy the afternoon before getting back to the design work.  Not long after leaving we drove down a steep road and then crossed a very narrow bridge. Ian was driving the big van filled with women while navigating a bad road when suddenly he said, “I think that woman is carrying a dead baby.”

What?  Stop the car!

I jumped out and ran back to find a woman walking up the steep hill, sobbing, carrying what looked like a dead baby.  I quickly asked her if the baby was dead and she shook her head and said “no”.  I then saw that her faced was swollen and covered in bruises.  The baby’s head had a big bump and was bruised as well.  I tried to get a man who walked right by her to stop and help interpret for me, but he was not interested in assisting in any way.

Through tears and heavy sobbing she told me that her husband had beat her whole body and that she was trying to get to the police. She had been walking for two hours (with many vehicles and people passing her, I might add) when we found her. The baby was alive, but both had been severely traumatized.  We got her in the van and our amazing team prayed with her immediately for healing, protection, peace, joy and anything else they could think of.  Twenty minutes later we had her at the police station to report the beating and then the police would take her straight to the hospital to have both mother and baby cared for. We will go and check on her tomorrow.

A shaken up group of women arrived at our destination (Bushfire Festival) and it was almost noon, but they pulled it together and forged ahead as planned.  We had a wonderful couple of hours meeting other Swazi artisans and getting more ideas for our own designs.  On the way back we stopped to pick up groceries for Becky Fern to whip up a delicious meal, while the other ladies got back to their design work.

As we were heading home I got a call from Nomsa at the TB hospital.  Baby Rahab’s (who is in a different hospital suffering with pneumonia, malnutrition and severe dehydration) mother (who is at the TB hospital) had taken a bad turn in the night.  She went through a series of seizures and then suffered a stroke.  She appears to be paralyzed on her left side and Nomsa asked us all to pray because she didn’t think this young woman (23 years) would live through tonight.  Becky, Eleasha and I will go in the morning to spend time with Nomsa and continue encouraging her. We sincerely hope that Baby Rahab’s mother is still alive.

So after dropping the volunteer team off at their rooms, Ian and I headed back to the farm, put the chickens away, let the dogs out, put on some music, threw in a load of laundry and then I sat down to write this blog and Ian went to work on a spreadsheet in his office. 

It has been a year (day) of highs and lows, but through each and every situation we feel the hand of God on our shoulders and His spirit around us.  Ian often says with a touch of sarcasm, “If it were easy, everyone would be doing it.” 

It is not easy, but there is nowhere else in the world that I would rather be that in His will, and I am thankful that His plan has brought me here.  Thanks for joining us on this journey.  I pray that you have been blessed.

Live from Swaziland … it’s Saturday evening (sorry for the late post!).

Janine

Bombing in Boston, Flooding in Chicago, Burned Baby in Swaziland.

 Do you ever sit back and think, “The world has gone crazy”?

This week two bombs went off at the Boston Marathon killing three people and injuring 176 people.  With live television and high-speed internet the world was able to watch each moment of the blast as well as the search and capture of the two suspected bombers.  We all want to protect our children and family from harm, but it is not always possible.  It is easy to live in a constant state of fear, but fear is not from God and it can cripple us in our every day life, if we allow it to.

After a great week in Florida and Georgia (with Spencer and Chloe) and the opportunity to speak to many people and raise funds for Heart for Africa I got on a plane to Chicago. When I arrived it was snowing and many streets were closed because of flash floods and rivers overflowing.  The McDonalds in this photo was just down the street from my hotel was an “Island” surrounded by water.  Many people lost their homes in these unexpected floods and now have to pick up the pieces of their lives.  We can’t control natural disasters, but they are a part of life and we must help one another when times like these are in front of us.

Meanwhile back in Swaziland the little baby boy who was burned by his father continues to lie in a hospital fighting for his life.  He has 2^nd and 3^rd degree burns on 20%-25% of his little body and also arrived at the hospital severely malnourished and Anemic.   I am told that he needs to consume 5,000 calories per day in order to get “nutritionally stable” and give his body a chance of living and not dying.  That is pretty hard to do when you are only sipping a cup of water and gnawing on a chicken bone.  We are working on a plan and I will give a full report after I return to Swaziland and am able to share news with you.

These three “news items” don't include so many other critical issues and events that took place both globally and locally, but they are three that caught my attention this week.

I am in awe of the people who are the “first responders” in terrorist attacks, natural disasters and deliberate acts of child abuse.

We saw Firemen, Medical personnel and ordinary everyday people rush to the aid of the bombing victims who lost lives, limbs and blood.  We watched emergency response teams rush in to rescue flood victims while their homes were destroyed.  And I had the honor of watching ordinary everyday people in the US and Canada be deliberate in coming to the assistance of the little boy in Swaziland who was not on the 24-hour news, he was not in the mainstream media, but still needed rescuing from a deliberate act of child abuse.

Last week’s blog prompted an outpouring of prayer, love and financial support from the people who sacrificially gave $10, to other people who gave what they could at that moment, and still others who have committed to do all they can to have this child live a full and un-scared life.  We live in a broken world, full of sin, fear and evil.  But this week I was reminded over and over again that Jesus is securely on the throne, and while I can’t begin to understand the “why” of any of these situations, I am so thankful for people who don’t have to have the “why” question answered in order to help. 

This week I encourage you to take a moment to look around and ask who or how can you provide help and hope for someone today.  You can be a part of something GOOD in someone’s life when a lot around us looks like bad. But we have to be deliberate in our actions, just like the First Responders in this weeks news headlines.

I am in the US for two more days and look forward to spending them with Ann and Doug Williams and their friends and family in Munster, Indiana.  I am thankful for all the people who hosted events for the past three weeks to help us raise awareness and funds for Heart for Africa including:  Shelly & Barry Harp (Texas), Pam Joseph (Georgia), Beth Blaisdell (Georgia), Sandra and Andy Stanley (Georgia), Sandra Green (Georgia), Judy and John Bardis (Nevada & Georgia), Joanne Ivy (Illinois) and Kevin and Karen Burkum (Illinois).  Without your hospitality and commitment many people would have missed the opportunity to be a part of something big that God is doing in Swaziland.  Thank you also to all of you who have given so generously. 

Live from Chicago … its snowing here and I will be heading home on Monday.

Janine

PS – a quick update on “Nomsa” from my wednesdayswithnomsa.blogspot.com . Her culture results are still not back so they have sent another one away for testing. We should have results back in 4 more weeks.  Will post as soon as we know.