Saturday, August 31, 2013

How and when do the Toddlers to their new home? (And burned baby update).




Let me start by giving you an update on Benjamin, the baby who was set on fire by his father in March 2013 (read http://janinemaxwell.blogspot.com/2013_04_01_archive.html). Last week he had his colostomy reversed and is the happiest little boy when he celebrated his 2nd birthday with us on Wednesday, August 28th.  He is incredibly musical so I just "had to" buy this little zylophone at the local market and he played it like a pro.  Happy Birthday Miracle Baby Benjamin!

Back to the blog title, and let me say that is a really good question. 

In March 2013 the ground breaking ceremony happened for the Labakhetsiwe Toddler home and the race against time began in earnest.  How fast could Mark and Peter’s construction team get this huge building built?  Would we have to turn away a baby from the El Roi Baby home because we have no room before the new building was built?  A new baby was arriving every second week and sometimes we would get two new babies in a day!  The race really was on … and the team has done an amazing job (and still are)!

The building is almost complete. The kitchen cabinets are in.  Austin Klee has built all the cabinetry for the children and Caregiver bedrooms.  Jere Scott, Frank Tanaanu and Mark Hackett built 22 double bunk beds for the toddlers (from a design in Jere’s head) and outdoor benches for their little shoes.  The plumbing is almost complete and the electricity works… and the babies continue to arrive over at El Roi.


A few weeks ago we had to make a big “temporary” move. In order to take pressure off the El Roi home and staff we moved all our “tinies” up to Kuthula Place. The irony of that is the Kuthula Place was designed to be a “baby-free zone” where our Caregivers could go when they needed a break, a nap, a “time out” or a shower.  Right now we have 13 babies under the age of six months where they are getting lots of individual attention by the Aunties who focus on our littlest ones. 

That left 25 “crawlers” and “walkers” living at El Roi, which was much more manageable.  Next week is the big move (or that is the plan/hope). We will actually move all 25 babies from the El Roi home over to the new building (like a big road trip).  We will move their cribs, clothes and whatever “stuff” will be needed for a week.  It’s like they will all be going to camp.  While they are away at camp we will empty the El Roi Baby home in to a container that is sitting outside the home (and is having shelves from Robert Smucker installed as I type this).  Then we will do a deep clean at El Roi, have the building fumigated to get rid of a nasty cockroach problem and then do minor repairs and repaint the floors. 

When that is all complete we will move 14 “crawlers” back to El Roi and the 11 “walkers” will be stay in their new home, that was camp for the week.  Then the “tinies” will move back home and El Roi will be home to 24 babies again.  Simple eh?  Kuthula Place will become a Place or Peace again and we will all have room to grow :).

The first children to make the Labakhetsiwe their home will be:  Gabriel, Rose, Benjamin, Emmanuel, Caleb, Miriam, Anna, Esther, Levi, David and Joshua.  In the next few months we will move Andrew, Ishmael, Paul and Jeremiah as they become more sturdy on their feet.  Once they can move around and cause chaos (i.e. steal a small baby’s bottle!) then it is time for them to move.

For those of you who are worried about the double bunk, please don’t worry. The big kids who move to the toddler home will move in on the bottom bunk initially and won’t move up top until they are bigger and younger ones move over. 

We have a very busy week ahead with many visitors, volunteers and long-term volunteers (Amber and Kenny VanWinkle moving here!).  While this is a long weekend in Swaziland we have much preparation to do and everyone is busy doing their part.  We pray for peace, wisdom, PATIENCE, love and favor in the days ahead.
I am happy to announce that Baby Emma arrived this week! She is 10-weeks old and weighs 3.4 KG (7.4 lbs).  We are happy to have her home.

We do still need funding for the appliances and furniture for the Toddler home.  To date we have raised $14,637 of the $30,000 that is needed to finish this week.  If you can give, please do so today at https://heartforafrica.secure.force.com/pmtx/cmpgn__ministore?id=701C0000000VB2s

If you live in Canada you can donate at: http://www.heartforafrica.ca/Toddler%20Home%20Supplies.aspx

Live from Swaziland … I am busy, tired and excited.

Janine

Saturday, August 24, 2013

US Air Force, eHarmony, a double knee replacement and an 80-year olds birthday party at Project Canaan

 
On August 26th, 1933 Jere Scott was born in San Antonio, Texas.  It was impossible for his father and mother think or know that when Jere turned 80-years old he would be celebrating on the top of a mountain in Swaziland, Africa.

Why is he doing that? Because he is on Project Canaan designing and building the toddler bunk beds for the children who live at the El Roi Home for Abandoned babies.


Jere is the best example that I can give of someone who wants to “finish well”.  When he arrives at the Throne of God or “Pearly Gates” as some say, he wants to have given his all to the very end of his life, and that is just what he is doing.  This blog is dedicated to Jere Scott and great example he is to all of us.  Please keep reading, you will be inspired.

The first 80 years that Jere has been alive have not been boring.  He served in the United States Air Force for many years and was in the Korean War as well as the Vietnam War.  After that he spent 15 years in Japan as an Air Traffic Controller Instructor, which is where he learned to speak Japanese and gained his love for Asian Cuisine.

Jere became a Pastor later in life spent 20 years building churches in Alaska with his wife Peggy.  After tragically losing Peggy to Alzheimers Disease, Jere decided that he was not ready to be alone and joined eHarmony.com. That is where he met Janet in March 2004.  Nine days after meeting Janet “on line”, Jere proposed marriage.  Thirty days later Jere landed in Honolulu, Hawaii at 8:30AM to meet Janet face-to-face for the first time.  At 4:30PM that same day, April 9, 2004, Jere and Janet Scott became husband and wife.

In July 2005 Ian and I met Jere and Janet Scott at the Lugogo Sun Hotel in Swaziland.  They had come with their church, First Presbyterian, in Hawaii on an 11-day Heart for Africa volunteer service trip.  We became fast friends and since meeting them we have served together in Swaziland, Malawi and Kenya.  They typically commit 6-8 weeks each year to come and serve alongside us, and their help has been invaluable. 

Jere has been a part of every building project in the 3 African countries that we have worked on. He designed, helped construct and personally outfitted the Kufundza Carpentry Center with carpentry equipment on Project Canaan.  Jere has also designed and built the cribs that the babies sleep in at El Roi and the new toddler bunk beds that are being built for the Toddler home.  His creative thinking, his desired to minimize waste, but optimize efficiency has kept those working with him on their toes at all times J

Oh, did I mention that Jere is diabetic, has lost the sight in his right eye, has had both knees replaced … TWICE!? And, as you may have guessed, is turning 80-years old on Monday, August 26th, 2013.

Why am I writing about Jere Scott today?  Because he inspires me to “keep on keepin’ on” (as my friend Rose Smith says), even when times are hard and nothing seems to go right.  Jere is on his knees (the new titanium ones) for our family and for Heart for Africa on a daily basis and we treasure his prayers and words of encouragement.   Jere makes me want to give all I have to give for as long as the Lord allows me to serve Him.  Jere has not retired, and he plans to do all he can with what he has been given until the moment he is taken on to heaven.  May his actions inspire you to do the same.

Tonight we are hosting Jere’s 80th birthday party on our patio with a few other friends who love the Scott’s as we do.  We will have good food, many good laughs and hear a lot of stories as we listen to Hawaiian music under the African sky.

Live from Swaziland … Happy 80th Birthday Jere Scott!

PS - if you want to celebrate Jere’s life and give him a wonderful birthday gift, feel free to purchase one of the bunk beds that he is making for the children.  Each bunk costs $150 and that includes the materials to build it, a mattress, sheets and blankets.  You can do that today at: https://heartforafrica.secure.force.com/pmtx/cmpgn__ministore?id=701C0000000VB2s

We have a few photos tricks up our sleeve for Jere's party tonight.


Saturday, August 17, 2013

Live from where? It’s Saturday at what time?


It was only 55 hours ago that I left Chloe at her new school, Morrison Academy, in Taichung, Taiwan.  On Thursday afternoon “Taiwan time” I left Taichung expecting to arrive in Johannesburg, South Africa on Friday morning “South African time” (-6 hours from Taiwan. +6 hours from Georgia). 

I was honored to speak at the first chapel of the year at Morrison Academy and I gave a message that was hopefully in line with this year’s theme, which is “Journey to Joy”.  From there I said my sad/happy goodbyes to Chloe, and then my friend Cynthia drove me to the High Speed Rail to get me to the airport in Taipei.  Apparently a typhoon hit the Philippine Islands and Hong Kong was also getting hit hard, which meant that my flight was delayed.  Long story short, I had a “time of rest” for 24 hours at the airport in Hong Kong, and 52 hours after my journey began, I arrived home in Swaziland with Ian meeting me at the airport. No sign of my luggage, but that’s okay. I am home.

I haven’t slept in days and I don’t even know if I am jetlagged or on “normal time”.  But I know that I am really tired.  The past few weeks have been spiritually, emotionally and physically draining.  I hope to sleep a lot in the next few days and then be refreshed and refueled to do what I am called to do next.

I will say that I am so very proud of Chloe.  Imagine going from Canada to living in the US, then on to Swaziland and now Taiwan?  We know that the Lords hand of protection is on her and we know that she is where she is supposed to be. We miss Chloe and we miss Spencer and that won’t change, but we are so very proud of both of our children.  They have courage that leaves me proud, and unbelievably speechless.

All that to say that today’s blog is short because I don’t even really know what time zone I am posting in ... and I am tired.  But I really appreciate you reading this :)

Live from Swaziland (I think) … it’s Saturday evening ( I think).

Janine

PS.  A good news report that I must give is that Benjamin had his colostomy reversed this week and liquids are passing nicely.  This weekend they will introduce solid foods and we hope he will be home with us permanently on Monday.   Benjamin celebrates his second birthday this month and we all know that this little boy has faced more than many people will face in their whole lives. But El Roi , the God who Sees, has been with Benjamin at every step and I am thankful that HE has invited us to be a part of this little boys’ life.  Thank you for your prayers and support for this special child in our lives.

Saturday, August 10, 2013

Why is Chloe going to school in Taiwan?


That question is likely the most often asked question this year, so let me take this opportunity, while I am sitting in Taichung, Taiwan to give you the answer.
When we moved from Canada to Alpharetta, Georgia Chloe was in 4th grade (or Grade 4 as we say in Canada).  She attended Kings Ridge Christian School for the rest of her Primary School years until she graduated and moved to Milton High School for 9th grade.  It was during that year that we decided to move to Swaziland, Africa at the end of May 2012. Spencer would have finished High School and would move on to Florida State University and Chloe would attend a private High School in Swaziland called Waterford Kamhlaba. 

Only five days after we landed at our new, almost finished home, at the top of a remote mountain in Swaziland, Chloe entered the middle of her 10th grade year (or Form 4 as we say in Swaziland).  She would be required to cram a full year of school in to half a year, while adjusting to a new continent and way of life.  The move was difficult, school was intense, internet communication was almost impossible and it was a bumpy landing for all of us (except for Spencer who moved to a new state in to his first apartment at the age of 18 – yes, you sense a touch of  “Mother’s guilt”).

Chloe was not happy. She had a 90 minute commute to and from school each day, had a huge workload, a totally new way of teaching/learning and was missing her friends back at “home”.  Even knowing where “home” was, was a challenge.  Ian and I would say that Canada was “home”, but both our children would say that Georgia was “home”. Now some of us lived in Swaziland and one in Florida. Where was home really?  The first six months in Swaziland were really, really hard and we knew soon enough that Waterford was not the place for Chloe.  But if not Waterford, where?  I have no ability to teach Home School. We didn’t believe that Georgia (or the US) was right for her because we don’t have family there, and Canada seemed like a life-time away from where we were then.  It was time to pray and pray fervently because it seemed like there was no solution, or not one that we could see.

Chloe with Ralph's dog Elmer
InOctober 2012 I had the privilege of being invited to Taiwan for the annual Walk For Water event hosted by my dear friend Lewis Lu.  Lewis and his High School students host an International Youth Conference every year in Taiwan and for the past few years they have had a Walk-a-thon to raise money to help us at Heart for Africa Swaziland.  We are so thankful for their continued involvement and support.

During my visit in 2012 I was also invited to speak at a private school called the Morrison Academy (MA).  I had been invited to speak there in 2011 through one of our past Heart for Africa trip volunteers named Cynthia Lim.  Cynthia works at MA and arranged for me to share at their weekly Chapel Service and I was thrilled to be invited back again in 2012.

When I got back to Swaziland I was telling Chloe and Ian about my trip.  I love Taiwan and consider it a second (third? Fourth?) home.  I was also telling them about this really cool school that I had spoken at (MA).  Chloe looked at me and after a while said, “I think that is the school I am supposed to go to”.  Ha.  Not a chance.  First of all, it is in TAIWAN, which just happens to be a MILLION miles in the opposite direction of where Spencer lives and both countries that we had moved from.

After several attempts at discussing this option with us Chloe said, “Why don’t you pray about it?”

Well, I didn’t need to pray about it. The thought was absurd AND besides, she wouldn't qualify for the school because it was designed for children of Missionaries who were serving in Taiwan and other parts of Asia, NOT AFRICA.

Seaweed flavored Lay's Potato Chips?
But when your 16-year old reminds you to “ask God” what He thinks, rather than leaning on your own understanding (Proverbs 3:5-6) you kind of have to do it.  And so we did.  And that is the beginning and the end of the story. What seemed impossible became possible.  Obstacles were easily overcome and Ian, Chloe and I all had total peace.  After a visit to Taiwan (and Japan) in January we knew that Chloe was to finish up her High School in Taiwan and became increasingly excited about this new opportunity.

Chloe’s application was accepted, we found a wonderful host family whom she will live with, she worked diligently to complete Geometry and World History on line to get ahead of the game before starting school and now she starts 11th Grade on Monday morning at Morrison Academy in Taichung, Taiwan.

I am in awe of a God who sees everything and whose plans for us are beyond our wildest imagination. If Lewis Lu hadn’t come to serve in Swaziland, I never would have met Cynthia. If Cynthia had not invited me to speak at Morrison, Chloe would not be attending this new school. If Chloe had not attended Morrison Academy in TAIWAN for the last two years of her High School life, then … what? 

It is unfathomable to think of how the entire trajectory of her life has just changed. We thought that happened when she moved to Swaziland, but now what?  Who knows?  God knows. And for that we give thanks and rest in peace that His plans ARE in fact perfect.

Live from Taiwan … it’s Saturday afternoon.

Janine

PS – What is Chloe thinking about all this right now?  You can read for yourself on her blog from last week. I encourage you to take the time – you will be inspired: http://chloemaxwell.blogspot.tw/2013/07/sitting-in-silence.html

Saturday, August 3, 2013

Two dogs killed by Black Mambas, Swazi Government is dissolved, Nomsa is gone and Chloe is leaving.

  This week had highs and lows.  The highs included getting a sweet 6-week old kitten from Spencer and Chloe. The lows included watching our dog Nala die from a Black Mamba bite.

In between those highs and lows the Swazi Parliament was dissolved by His Majesty King Mswati III and my dear Nomsa has run away from the isolation ward at the TB Hospital. 

Here is more of each story.

Last week our dog Twende (Doberman) gave birth to four puppies down on the farm.  One died and birth and the rest settled in nicely to puppy life.  Only a few short days later on Tuesday, Twende, was bitten by a snake. No one saw it happen, but they found her writhing in pain, foaming at the mouth, in full seizure and eventually death.  We were able to move the little puppies up to The Lodge where a couple of our interns and longterm volunteers are feeding them every 90 minutes by bottle. 

The very next day, Chloe and I were in town and she told me she and Spencer wanted to buy me a kitten for my 50th birthday (coming up in November) and so we went to the “Swazi SPCA” and brought home a sweet, tiny kitten named “Francisco” (for all ELF fans).  An hour after we got home we saw our dogs knock down the gate of their pen in order to chase a huge bull that had strayed up to the area between our house and the Lodge.  Our dogs (Max, the BIG Doberman, Nala, the Boerbull, and Jack, the Jack Russell Terrier) chased the bull down the hill all the way to the farm with Chloe chasing on the ATV (4-wheeler).  Somewhere between the farm and home we believe Nala was bitten by a snake, likely a Black Mamba.  The next six hours were hours that I never want to relive again.  Chloe and I, along with Peter, Denis, Danny, Jere and Janet, watched Nala go through extreme seizures, bowel eruption, projectile vomiting, paralysis, loss of breath and finally death in our garage.  It was a horrific ordeal and there was nothing we could do (other than pour milk and charcoal down her throat to try to remove the poison).  We were told when we moved here that we will need to have lots of dogs and keep them breeding because we will lose lots of dogs to snakes. Well, the people were right.  We lost two dogs/family members in 24 hours. I am thankful for Francisco and the PERFECT timing is his arrival. God’s timing is always perfect.


Speaking of timing, its election time here in Swaziland.  On Friday His Majesty called a gathering of the nation called “Sibaya” and announced that according to the Constitution the election process is officially beginning.  I won’t claim to understand all or even most of the process, but here is the gist of my understanding. 

On Friday the Prime Minister, Deputy Prime Minister and all the Government Ministers stepped down from office and His Majesty King Mswatii III dissolved the Parliament.  This allows the people who want to run for office to do so without being employed by the government at the same time. Nominations for Parliament started yesterday and will continue through tomorrow morning.  The nominees will be named tomorrow or Monday and are not allowed to campaign at all up until the Primary elections are over on August 24th.  All “campaigning” is done by “others”, but not by the person running for office.  Then, once the Primary’s are complete the election campaigns begin in earnest and the final election takes place on September 20th.  My understanding is that there will be 56 members of Parliament elected and then 10-12 more appointed by His Majesty to make up the Parliament.  The Cabinet is appointed by His Majesty from Members of Parliament.  The Prime Minister and Deputy Prime Minister are also both appointed by His Majesty.

There are two people who are still fulfilling their positions.  The first is Prince Guduza (our next door neighbor and Speaker of the House of Parliament) and second is the President of the Cabinet.   We are told in the newspaper that His Majesty will appoint a “committee” of people to run the country during the next two months during this election period.  We are praying for this nation and all who are living and serving here.

In other important Swazi news, Nomsa was told that she would be moving in to isolation and starting treatment for XDR-TB last Friday. She got a weeklong pass to go home and think things through. She went to the hospital on Friday, but when they moved her in to her isolation room I guess she panicked.  She left the hospital at 6PM last night and has not been seen since.  We are praying for Nomsa, and all who are living and dying with TB, MDR-TB and XDR-TB.

On a personal note, our daughter Chloe will be leaving for school in Taiwan on Tuesday, only three short days away.  In addition to the other things that have happened this week it has been a time of reflection, sorting, packing, planning and many tears … tears of joy and tears of sorrow. We are praying for Chloe, for her new school, friends and the family whom she will be living with. Next weeks blog will be dedicated to Chloe and my thoughts around my baby moving to Taiwan.

Live from Swaziland … we are praying.

Janine


Saturday, July 27, 2013

Nomsa confirmed to have XDR-TB and a woman goes in to labor at TB Hospital.

 
This blog has two stories.  One is about Nomsa’s health status at the TB Hospital.  The other is about a pregnant woman, also at the TB Hospital.  I will give more detail about the pregnant woman in this blog and then give a detailed report about Nomsa on my Wednesday blog (wednesdayswithnomsa.blogspot.com).

Thursday night Nomsa sent me a text message telling me that she had run away from the hospital after a nurse (who should be fired) left her a note on her bed giving her the “heads up” that her most recent SMEAR test had come back positive and she would be moved in to isolation the next day.  Nomsa ran and then asked me to forgive her.  It was a long complicated night, but with help from friends who shall remain anonymous we were able to find her in Manzini, get her back to the TB Hospital and sneak her back in to the ward with the promise that I would come in the morning and discuss it all with her.

Doctors making rounds at TB Hospital
 The morning came and Chloe and I headed to the hospital.  When we arrived we learned that the Doctors were going to meet with Nomsa and tell her that she was no longer responding to the Multi-Drug Resistant Tuberculosis (MDR-TB) and that they now wanted to start treating her for Extremely Drug Resistant Tuberculosis (XDR-TB) and they would immediately move her into an isolation room with one other patient so that she did not infect any of the MDR-TB patients with XDR-TB.  There is a documentary being filmed about MDR-TB and so the filmmakers were there to capture this awful moment (their intention is to bring awareness to the issue and hopefully drug companies can help with better treatments in third world countries).  The message of XDR-TB is equal to being given a death sentence, and Nomsa knew it. She is a smart girl and asks questions so she knows that no one has recovered from XDR-TB in Swaziland, ever.  The news was devastating, the silence was earth shaking and her tears were heart wrenching.

Nomsa is being told she has XDR-TB.  BBC/PBS filming.
On the other side of the half wall lay another MDR-TB patient who was pregnant.  She is bone thin with a small baby bump showing the world that she was carrying a child.  She is also HIV positive and very very weak.  Her CD4 count (for those who know that is) is between 129-230.  After delivering Nomsa’s news the Doctor moved on to finish her rounds in the ward.  She found the woman in distress and suspected that she was in full labor. The baby was only 34 weeks old, but an emergency C-Section would need to be done to save both mother and child.  There is no labor and delivery facility at that hospital so other plans had to be made and made quickly.

Thankfully the woman was in false labor just one week ago and that prompted me to try to help find a hospital that would admit and care for an MDR-TB patient.  The disease is highly infectious so it would require full isolation as well as total fumigation of the Operating Room with no use of it for 24-hours.  The C-Section would have to be perfectly timed on a Friday afternoon after all other C-Sections are completed and the room can rest for the weekend.  I am thankful to say that the private Women and Children’s Hospital (WCH), where Benjamin was treated for his burn and where Helen Muli had her baby last Friday, said “yes” and agreed to help us.

Unfortunately the OBGYN at the WCH died suddenly and unexpectedly a few short weeks ago and the Doctor who was filling in for her lost her brother suddenly last Friday so there was a “hole” in the communication process when we tried to contact WCH.  I will say that Sister Patience (who likely will never read this blog) was amazing and stepped right in to help bring order to confusion and prepare for this special patient.  Then there was the transportation problem.

The TB Hospital did not have a way to transport the woman in labor to WCH.  WCH had an ambulance, but it was heading to Mbabane (the opposite direction).  The labor pains were intensifying and the woman was 4cm dilated.  Sister Patience asked if I had a car and could just bring her.  Well, yes, I guess, but she is in labor and has MDR-TB … but what was the alternative?  Chloe and I went back to the hospital and helped her out of bed.  Took her hospital gown off and put clothes on her rake thin body.  Helped her down the stairs. Put a mask on her (we already had masks on) went back and got a blanket for her along with her cell phone and the nurses handed me her MDR-TB medications (syringes for her daily injections and 22 pills per day) along with her HIV Anti-Retroviral tablets.  Surreal.

MDR-TB patient in labor in our car.
As I was driving away with windows open for natural ventilation and CDC masks on I suddenly wondered about liability?  Patient confidentiality?  Family input and a thousand other things.  Last week when we formulated the plan for us to take her to a private hospital I did speak with the woman’s brother to get his consent.  He was so happy that we wanted to help and asked if we could also take the baby when it was born as he was already caring for three of her children?  I said we would discuss that after the baby arrived with Social Welfare involved.  So as Chloe and I drove the woman and her labor pains were intensifying I thought it best to call her brother again.  Thankfully he was still happy that we were helping and gave his consent.  In fact, only an hour later he also gave the nurses consent to do a tubal ligation during surgery to prevent any further pregnancies for this woman.
MDR-TB patient in isolation at private hospital.
At  4:55PM a beautiful little baby girl was born.  I was thankful to be in the Operating Room for the surgery, but it was eerie to see a beautiful life come out of something that looked like a corpse.  I don’t mean to be unkind or critical, but that is what it looked like. Even Sister Patience commented on how such a perfect new life could come from “that shell”.  The baby was 2KG (4.8 lbs), breathing on her own and looks perfect. 

Welcome baby girl (unnamed).  2KG and healthy.
I requested that the baby not be taken to the mother for two reasons. First, the baby must not be exposed to MDR-TB if possible. Second, the mother is HIV positive so if we can avoid breastfeeding that would be best.  But the real question is if the mother will take the baby home or if she will come to us. If the baby goes home with her (well, with the family because the mother will go back to the TB Hospital) then they can decide how the baby is fed.  If she comes to the El Roi Baby Home then she will enjoy a formula diet.

As Chloe and I drove home at 6PM I received a call from an unknown number.  It was the Grandmother to the new baby girl.  I had texted the good news to the brother and he had called her. She was so happy to hear that both mother and baby were well (technically we aren’t sure about mother yet, but the surgery went well).  She requested a meeting with me today at noon at the hospital.  I am hoping that we will meet and that she will take the baby girl home to be raised within the family, but I suspect that will not be the case.  I will post an update on this blog after the meeting.

God’s timing is always perfect. If Nomsa had not run away on Thursday night I would not have been at the hospital to hear the news with her about her XDR-TB status. If I had not been there I may not have been notified that the woman was in labor.  The Lord had Nomsa there for a specific purpose in that woman and baby’s lives and HE kept her there until His work was complete.  I stand in awe of an awesome God who sees everything and wastes nothing.

Live from Swaziland … I will start to write my Wednesday blog now. It is heart breaking and complicated.

Janine

Update:  On Saturday I went to the hospital and met with the woman who I was told was the Gogo (Grandmother). In fact, she wasn't the Gogo, she was the wife of the oldest brother of the mother of the baby.  Why wasn't the Gogo there?  Because she was drunk.  According to the family this happens by 9AM each morning so by the time we met at noon there was no speaking to her.   The mother of the baby named the baby "Surprise" because she said she didn't know she was pregnant until 6 weeks ago in the hospital.  Well, "Surprise" is now at the El Roi Baby home and while we will always have her given name as a part of her life, we will nickname her Abigail.   We are thankful.

Saturday, July 20, 2013

One baby to hospital, one baby’s legs amputated, one unborn baby at high risk.

 
This was a tough week. Within the past 24 hours we correctly diagnosed a 9-month old baby in the rural community who was severely malnourished with Kwashiorkor and got her and her mother to the hospital days before she would have died (according to the doctors).  Last year this same mother lost a child to malnutrition after spending SIX WEEKS in the hospital. They had arrived to late. 

Next we met another 9-month old baby who “somehow” was found in the middle of a cooking fire and whose legs were burned so badly that they had to be amputated.  The baby had been discharged on April 16th and still had large 3rd degree burns exposed.  They had been told to keep the wound open so that it would heal. Based on my learning from Benjamin’s burns I knew that the skin would never grow back and he would need skin grafts. In addition the wounds were infected and they had no antibiotics or even bandages.  We were able to get him to the hospital and directly to a surgeon who cleaned up the wounds, treated with antibiotics and scheduled a meeting in two weeks to discuss skin grafting. Total cost to help that day was $6 USD.


But neither of those situations were what really sucker punched me. It was the 9-month* pregnant woman who is dying of Multi-Drug Resistant Tuberclosis in the hospital and was believed to be in labor.

When I dropped in to see Nomsa on Wednesday she told me about this woman’s tragic situation and we tried to speak with the woman to encourage her, but she is totally deaf now from the TB treatment.  She is bone thin from extreme weight loss and her eyes were sunken back in her head.  She would slowly reach out her hand to ask for help, and would shout out as she couldn’t hear the volume of her own slurred words.  After praying with her we left and went on our way.  The next day I stopped in to see how she was doing on a “nudge”, only to find that Nomsa was convinced the woman was in labor. She had a urinary tract infection, which I am told can bring on labor.  An ultrasound suggested that she was 36 weeks pregnant, but to the naked eye looks like she is 6-months pregnant and hardly showing. 

This is a long, long story that I will cut short for Saturday morning purposes.  After voicing my concern to other patients and our volunteers (not helpful) I went to the nurses and asked specific questions about how and where the woman would give birth.  The nurses told me that she can’t give birth naturally because childbirth would like be the death of the mother, and possibly unborn child.  She would need a Cesarean Section.  I asked where that would be performed (believing she was in labor at that moment) and the nurse said she did not know.  No plans had been confirmed at that time, but she did know of several local hospitals who had explicitly said that they would not allow the woman to enter the hospital for fear that she would spread the horrific disease that she was living/dying with. 

MDR-TB is highly infectious and highly deadly, especially for people who are HIV positive and whose immunity is already compromised. With an estimated 46% HIV rate in the country some hospitals have chosen to not have any MDR-TB patients admitted to their hospitals. But then what?  Where would she go?  The nurse didn’t know and were clearly uncomfortable that I was asking (pushing). They assured me that when the time come that the doctors would have a plan, but I suggested that the time might come at 2AM and with no plan in place now, both mother and child would die.

I am not putting thoughts in their minds, but I wonder if they were thinking that might be the best option for both mother and child? The mother is likely to die from this terrible disease and if the baby lived it would be pawned off to an unhappy family member who is already looking after her other three children.  They would have one less patient in misery and the world has one less orphan?

Well, I don’t think that way, but they were clearly stuck.  Finding a hospital to take this woman to was way above their pay grade, responsibility and skill set so they were stuck.  I pulled out my phone and called an OBGYN at the Women and Children’s Hospital who had cared so wonderfully for Benjamin and his burn care as well as the inducement of Baby Daniel’s mother.  They are arguably the best (or in the top two) private hospitals in the country.  I explained the whole situation and she after I had finished there was a long pause, and then she said, “WOW!”. 

Yes, wow.  What do we do? I am not going to lie, knowing that the doctor I called was pregnant (and was also Helen Muli’s OBGYN) was part of my hope that she would have extra compassion. After more pause she said that she would go and speak with the Chief Medical Officer and call me back.  And she did.  Only 20 minutes later she called and said they would do it! (!!).  There were criteria that we would need to work with because they would need to fumigate the surgical room and let it sit for 24-hours after the surgery before it could be used again (i.e. over the weekend) and then they would provide her with an isolation room for three days before she was transferred back to the TB hospital. I really couldn't’ believe my ears. 

The next day I called the Chief Medical Officer at the TB Hospital and gently introduced myself and tried to explain the situation without suggesting that they did not have the situation totally in control, but I did say that IF we could help and IF our help was needed that we were willing and able. Note here that I did not have funding for this (likely $2,500+ USD), but I believed that if this was what the Lord wanted then He would provide the funds.  The Doctor thanked me for my call and said he would look into the situation.  By the end of the day he called back and said that he had personally gone to examine the patient and they believed that she was not in active labor. He assured me that they did have a care plan in place, but they believed that our offer was a much better solution and would provide a better chance of both the mother and the baby living.  He thanked me again for stepping out and taking the risk of helping and that he would like me to connect him to the people at WCH to make a plan.  Within an hour of that call the hospitals had spoken, and OBGYN was assigned to go to the TB Hospital to examine the patient and a plan would be made for delivery.

I want to mention here that I/we in no way were doing this or involved in order to receive her baby at El Roi. That never entered my mind because I believed (or chose to believe) that she had family that was ready to take the baby.  When we contacted her brother to get consent to move her to a different hospital for child birth he thanked us, fully consented and then asked if there was some way we could keep the child?  It was then that he told us he was caring for her first three children.  We will cross that bridge when we get there, but for now I believe that this young woman has a chance at life, and so does her unborn, innocent child. 

I woke up this morning at 3AM and had a message from a dear friend in the US. She asked what the cost of the C-section and hospital stay would cost? I told her I was guessing $2,500.  She has offered to pay the hospital bill.

El Roi sees us all.  He is our provider and our protector. I am so thankful that Nomsa is a patient at the TB Hospital because God is using her in a MIGHTY way. It is not a place I would want to live, and nor does she, but she does see that HE is using her and she has days were she is less hopeless because of that knowledge.

Live from Swaziland … I love when educated and powerful people work together to help others.

Janine

PS – on a very happy note I am thrilled to tell you that Helen and Peter Muli have a brand new baby girl!  Her name is Rosylen Muthikwa and she weighed 3.5 KG.  Mother and baby are doing well.  Her OBGYN missed out on the delivery due to the unexpected death of her brother, but she made the TB/C-section situation happen before she left for home.  Thankful.



*I do find it a strange coincidence that all three stories above with “9-months” old including the pregnancy.