On Thursday afternoon we lost our beautiful baby Megan to PCP pneumonia
(Stage 4 AIDS related pneumonia).
It is a deadly and unforgiving form of pneumonia that takes the lives of
almost everyone that it attacks, both young and old. When Megan first came to us she was very tiny and very
sick. At 2-months-old she was
fighting HIV, tuberculosis and severe malnutrition. In isolation for many months, our medical team and Aunties
worked tirelessly to keep her stable while dealing with feeding tubes, fevers,
mal-absorption, thrush and a myriad of other issues.
On Monday morning she, along with her ten brothers and
sisters (who are HIV positive), were on their way to see the specialist at the
Baylor Pediatric AIDS clinic for their monthly checkup and medication. They noticed Megan’s breathing was
becoming a bit labored and the doctor was very concerned, sending Megan
directly to the local private hospital to be assessed. She was admitted
immediately and the testing began.
By the next morning we were told that she was in kidney and
heart failure. WHAT?!? How could this be? It was the dreaded PCP pneumonia. PCP - three little letters that
are a secret code for “almost certain death”. I did not know that at the time, but I do now. But we prayed and we
hoped and we prayed some more.
Only a few hours later she was put on a ventilator to help with her
breathing and take some extra strain off her little body.
Wednesday came and went with reports of septicemia, acidosis
and still no urine. But Thursday
morning had a better report. They were starting to wean her off the ventilator
and thought it would come out completely by Friday! We were assured that she was not out of the woods, but that
she was heading in the right direction. I quickly sent out an update to our
Boards of Directors and 30 minutes later I got a call from Helen, who had
stopped by the hospital.
Megan was dead.
I was not prepared for those words. None of us were.
Megan is no longer suffering. There will be no more
anti-retroviral medication and no more feeding tubes. There will be no more physical therapy to help with her
mobility (or lack of) and no more exercises to help build muscle in her legs so
that one day she could stand on her own.
And there will be no more tickling, no more clapping hands and no more
birthday cake.
Celebrating Megan's 1st birthday on September 15, 2015. |
Megan was born on September 15, 2014 and shared her 1st
birthday with Ian (also September 15th). Next month there will be one less cake and our little Megan
will be deeply missed.
Live from Swaziland … this isn’t getting any easier.
Janine
Thank you for the many prayers, condolences and expressions
of love on Facebook, by email and elsewhere. If you would like to help us cover the costs
of Megan’s hospitalization or the emergency medical costs for any of our
children, you can do so by clicking here for the US link and here for the Canadian site. Thank you.